tag:blogger.com,1999:blog-6436664812597694354.post3492927655515988814..comments2023-10-14T09:22:36.275+01:00Comments on Supatra's Fairy Fund: 22 Nov 11Jorg Adlerhttp://www.blogger.com/profile/14113470996716463640noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-6436664812597694354.post-11323974490701986432011-11-23T22:40:39.915+00:002011-11-23T22:40:39.915+00:00I just became aware of your daughter's situati...I just became aware of your daughter's situation. My son also had diffuse intrinsic pontine glioma. I just wanted to mention that stopping steroids without weaning carefully (under medical supervision) can result in life-threatening complications. It may be that you already know this. Our son ended up on a ventilator in the pediatric intensive care unit when he suddenly stopped receiving steroids as a result of nausea and vomiting.<br /><br />I hope the best for your beautiful daughter!<br /><br />With hope,<br /><br />Sandy<br />Always Andrew's Mom<br />www.caringbridge.org/visit/awsSandy Smithhttp://www.caringbridge.org/visit/awsnoreply@blogger.com